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We host events where individuals living with rare diseases and their families can learn, connect, and support others such as the Living Rare, Living Stronger Patient & Family Forum and Running for Rare, a charity and awareness event. 4700 Millenia Blvd. HONcode standard for trustworthy health information: Program provides financial assistance to young adults with rare cancer. Provides air transportation to and from medical facilities in the eastern United States for seriously ill and injured children and an accompanying adult. Some are disease-specific, while other programs will help with any qualifying medical expense. NORD Launches Financial Assistance Program for Rare Disease Community Horizons three-year commitment will support the adoption of more than 30 children living with rare diseases. our Lived Experiences, as people living with rare conditions, motivate us to develop programs with a real world impact. Your browser does not support JavaScript. If so, there are resources to get help from community support to finding a doctor and treating symptoms. Provides help with suicide intervention, prevention, awareness, and education and hope through online crisis chat, educational on-campus and virtual college events, and awareness campaigns. We provide patient assistance programs to help individuals living with rare diseases: Our RareCare program helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. The following organizations can offer assistance directly or can help find other resources. See how many people we've helped in your state. NORDs primary sources of funding are grants and contracts, contributions, and an annual fund-raising event. The PPA can help you find a program that will cover prescription drugs at little or no cost to you. If you need help with prescription costs or insurance copays, the National Organization for Rare Disorders may partially or fully cover the cost.